Two Blessings and a Miracle: Aimee's Feedings

Aimee eats once every thirty waking minutes during the day, and is on a six hour drip at night. The reason that she eats so much daily, is because she is on a mostly liquid diet. She burns off the food faster than John does when he eats regular food, and therefore must eat more often. Aimee has what is called a MIC-KEY Low Profile Gastrostomy Feeding Tube. This is located in her abdomen, and is visible through most of the clothing that she wears. She can do most things that most two-year-olds can do, but there are some limitations. She can lay on her stomach, but she can not be bounced on her stomach onto a bed or anything else. She can take baths, swim, run. She falls down and gets hurts like any other two year does, and her MIC-KEY does not stop her from being two one bit... except once every thirty minutes when she has to lie down and get food manually put into her stomach.. Below are some pictures of what her mickey looks like and some of the supplies that I use.

This is what an actual mickey and is a
replica to what Amelia's looks like.

A mickey is attached to the stomach (or jejunum). Amelia's is in her stomach and I have no idea what a jejunum is, I just know that from doctors. Food and medicine is put into the mickey through what is called an extension. This is the main source of nourishment for people that have a mickey.

This is exactly the kind of extension that I have for Aimee.
The big opening is where I give her food from and the
small one is for medication.

To put the extension in the tube, you line up the black lines on the extension and the mickey, and turn the extension until it locks. The clamp should be on at all times unless food/meds in being put in.

Accessed MIC-KEY.

At night, Aimee is hooked up to a drip that pumps food into her belly slowly over six hours. We have what is called an EnteraLite Infinity pump that attaches to a drip stand, like an IV stand. It sits right next to her crib 24/7... well except when we visit other places, then it sit next to where ever it is she is sleeping at that night.